Time for an update. Since Stephen received his Chemo therapy there has been a lot going on. First the search for a stem cell donor among our children was completed. We are really happy we didn’t have one less than 6 children. Josh, our 6th child, is the only sibling that is a match for Stephen. Josh is happy but just a little nervous – as anyone would be.
Stephen has had some neuropathy as a side effect of the chemo. The pain is in the sides of his torso and down his left arm. He has been taking some medicine to help with the nerve pain. Of course medicines have their side effects too. It makes him light headed and very lethargic. He had been doing pretty good just puttering around the house but recently he has started having fevers. He spent a few days in the hospital getting fluids and checking for infections last week. One week later we are doing a repeat…he is at the hospital again getting fluids and antibiotics while he is checked for the source of the fever. Most likely nothing will be found.
This week they are running some tests and he will be having his PET/CT scan and getting results on Wednesday. It would be nice if the cancer has been reduced. The doctor is feeling like we should push forward immediately with his transplant and not wait until after Christmas. The plan for the time being is for him to start his transplant regimine December 17th. That is a week from this coming Monday. We will get all the details soon. For now we are starting doctors appointments with Josh for a physical, more blood samples and consent to donate forms. Stephen will be getting an EKG, Pulmonary testing, consent forms and other such preparatory tests as well. It looks like Stephen will be in LDS Hospital starting December 17th. Josh will start getting out patient shots starting December 22nd. He will be admitted to Primary Children’s Hospital December 26th for the cell collection. He will stay in the hospital until they have enough cells collected. It can take anywhere from 1-3 days. By the time he finishes, Stephen will be ready to receive the cells to rescue him from the treatment.
Like always – any planning is done with complete flexibility in mind. Things can change very quickly.
We had a wonderful feeling this past week as we enjoyed the blessing of having so many people from around the city, state, nation and world fasting and praying in Stephen’s behalf. We love and appreciate you all so much.